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EHLERS-DANLOS SYNDROME & Long Term Disability

EHLERS-DANLOS SYNDROME & LTD


Ehlers-Danlos syndrome (EDS) is a group of disorders that affect the connective tissues —  your skin, joints and blood vessel walls. Connective tissue provide strength and elasticity to the underlying structures in your body.

According to the Genetic & Rare Diseases Information Center (GARD), There are 13 types of Ehlers-Danlos syndromes (EDS). You can view more detailed information about all 13 types of EDS on the GARD website, as well as the Ehlers-Danlos Society’s website


Below are a 3 types of Ehlers- Danlos syndrome that have caused our clients to win Long Term Disability benefits:


Vascular Ehlers-Danlos Syndrome:

Vascular EDS is a more severe form of the disorder. It can cause the walls of the blood vessels, intestines or uterus to rupture. 

Vascular Ehlers-Danlos syndrome can weaken your heart’s largest artery (aorta), as well as the arteries to other regions of your body. A rupture of any of these larger blood vessels can be fatal.

Symptoms include:

  • thin, translucent skin that bruises very easily. In fair-skinned people, the underlying blood vessels are very visible through the skin. 
  • Arteries and certain organs such as the intestines and uterus are also fragile and prone to rupture. 
  • Joint hypermobility is present, but generally confined to the small joints (fingers, toes).

Classic Ehlers-Danlos Syndrome

  • Overly flexible joints. Because the connective tissue that holds joints together is looser, your joints can move far past the normal range of motion. Joint pain and dislocations are common.
  • Elastic / Stretchy skin. Weakened connective tissue allows your skin to stretch much more than usual. You may be able to pull a pinch of skin up away from your flesh, but it will snap right back into place when you let go. Your skin might also feel exceptionally soft and velvety.
  • Fragile skin. Damaged skin often doesn’t heal well. For example, the stitches used to close a wound often will tear out and leave a gaping scar. These scars may look thin and crinkly.
  • Molluscoid pseudotumors & fatty cysts on are also frequently seen. 
  • Hypotonia and delayed motor development may occur.

Symptom severity can vary from person to person.V

Hypermobile EDS (hEDS):

hEDS is characterized by joint hypermobility, which may lead to recurrent joint dislocations and subluxations (partial dislocation). In general, people with this type have soft, smooth and velvety skin with easy bruising and chronic pain of the muscles and/or bones.

People with hEDS may have:

Currently, there are no tests to confirm whether someone has hEDS. 

The diagnosis is made based on a person’s medical history and a physical examination.

For detailed information on diagnostic criteria for each EDS subtype and proteins involved with each, visit the Ehlers-Danlos Society



Has Your LTD Insurance Benefit been denied for Ehlers-Danlos Syndrome?

If you have EDS and your disability insurance claim has been denied, call 1-866-242-2451 today for a free consultation.

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